For those who don't know we had an appointment with specialists today because I really was hoping they'd help us figure out how to help Alex. He needs OT (occupational therapy) again and he also needs to see a dietitian who might have ideas for a crazy mom. Well, to say it went badly is an understatement.
First of all the appointment was canceled because we had the wrong insurance (they thought we were still on "state aid" insurance which we haven't been for over 2 1/2 years.) That's understandable, we had that when the surgery was done. I called, complained, and the appointment was "back on" for today.
I was so excited, hubby took the day off from work and everything for this darn appointment. We got there with plenty of time and as they were measuring/taking weight they dropped the bomb on our lap.
See, apparently with our HMO we have to have authorization not just for the team but have to have *each* of the doctors we need to see authorized. We had no idea and had jumped through several hoops and had waited months just for *this* appointment. She said we had to choose which doctor we wanted... we chose the pediatrician because maybe he could get us information we needed.
We waited fir a while and the *surgeon* who did the cleft repair came in to see us. She was thrilled and said that the pediatrician had given her the go-ahead and felt it was more important. I was crushed... absolutely crushed that my choices were ignored.
2 minutes later we were told we were going to have to leave because our "one doctor" quota was up (so to speak). We were there for no longer than 2 minutes. Good news is that his cleft repaired nicely. Bad news was I didn't see any of the specialists I had wanted.
I refuse to go back... it does me no good now. They don't have a nutritionsit like I had thought and any other help I need I am positive I can find with the right pediatrician. As soon as we were home I got online and changed the pediatrician once again. This kills me but I really need one who will look at our concerns as valid. I actually chose a woman this time, something I've not done before. This particular one is supposed to be really good (reputation is that she works with a lot of kids with needs.) Just never thought we could get in until now...
So crossing my fingers this finally gets someone's attention. I feel like I have been working for years and NO ONE has helped me. Not one darn doctor. It's devestating... they know he's too small but it's not something I know how to help anymore. He's 25 lbs and 39 inches at 4 1/2 years old. We do the darnedest most we can and I am determined to keep screaming for help until someone listens. This is our 5th pediatrician in the last 2 years by the way. (Grumble).
Thanks for the support and for listening. I'm so grateful I have other moms who don't think I've lost my mind.
2 comments:
Wow, I'm so sorry to hear about all you're going through! I hope you find a good pediatrician soon -- I think it makes a huge difference. Hope things are well other than that. Every time I visit your blog, I still can't believe you have three kids! Anyway, have a great week and I look forward to seeing pictures of your kids in their Halloween costumes.
I KNOW your frustration!! We have been struggling with issues with Bailey for nearly the same amount of time as you have with ALex. First the therapist, then the pediatrician, then the Psychiatrist, then another "specialty pediatrician" then a Naturopathy doctor followed by an Endocrinologist. We are currently being seen by the Psychiatrist and Endocrinologist and Homeopathic specialist. But I find myself so frustrated that we are unable to completely rid ourselves of her debilitating issues. This list of doctors does not include all of the herbs, vitamin supplements, and misc. treatments I've incorporated into our lives. I get your pain sister. I do believe, however, that you and I haven't been placed with special needs children so we could fail in our efforts. We have been placed with special needs children because we (you and me)are pushing, insisting, researching machines. We will find the fix and it will not be too late when we find it. In the July (I think) Ensign there was an article that stated that our spirits were trained to deal with our earthly trials before we came to earth so we would know what to do. With that being said, we will sally forth. We will gird up our loins. We will bare our burdens with power and determination. As determined mothers we will see the rewards of the fruits of our labors. We are in it to win it. Never surrender!
Post a Comment